Judy Heumann dead: Pioneering disability rights activist was 75


Judy Heumann, a famend and deeply revered activist who helped safe laws defending the rights of disabled folks, has died at 75.

Information of her loss of life Saturday in Washington, D.C., was posted on her website and social media accounts and confirmed by her youngest brother, Rick Heumann.

He mentioned his sister had been within the hospital per week and had coronary heart points that will have been the results of post-polio syndrome, associated to a childhood an infection that was so extreme that she spent a number of months in an iron lung and misplaced her potential to stroll at age 2.

She spent the remainder of her life combating, first to get entry for herself after which for others, her brother recalled.

“It wasn’t about glory for my sister or something like that in any respect. It was all the time about how might she make issues higher for different folks,” he mentioned, including that the household drew solace from the tributes that poured in on Twitter from dignitaries and previous presidents akin to Invoice Clinton and Barack Obama.

“Judy Heumann was a trailblazer — a rolling warrior — for incapacity rights in America,” President Biden mentioned in a statement. “After her faculty principal mentioned she couldn’t enter kindergarten as a result of she was utilizing a wheelchair, Judy devoted the remainder of her life to combating for the inherent dignity of individuals with disabilities.”

Heumann was broadly considered the “mom of the incapacity rights motion” for her longtime advocacy on behalf of disabled folks by way of protests and authorized motion.

She lobbied for laws that ultimately led to the federal Americans With Disabilities Act, People With Disabilities Training Act and the Rehabilitation Act. She served because the assistant secretary of the U.S. Workplace of Particular Training and Rehabilitation Companies, starting in 1993 within the Clinton administration, till 2001.

Heumann additionally was concerned in passage of the United Nations Conference on the Rights of Individuals With Disabilities, which was ratified in Could 2008.

She helped discovered the Berkeley Heart for Unbiased Dwelling, the Unbiased Dwelling Motion and the World Institute on Incapacity and served on the boards of a number of associated organizations, together with the American Assn. of Individuals With Disabilities, the Incapacity Rights Training and Protection Fund, Humanity and Inclusion and america Worldwide Council on Incapacity, in response to her web site.

Heumann, who was born in Philadelphia in 1947 and raised in New York Metropolis, was the co-author of her memoir, “Being Heumann,” and a model for younger adults titled, “Rolling Warrior.”

Her e-book recounts the wrestle her dad and mom, German Jewish immigrants who fled Europe forward of the Holocaust, skilled whereas making an attempt to safe a spot for his or her daughter at school.

“Youngsters with disabilities have been thought of a hardship, economically and socially,” she wrote.

Rick Heumann mentioned his mom, whom he described as a “bulldog,” initially needed to homeschool his sister. The expertise of fleeing Nazi Germany left the dad and mom and their kids with a ardour.

“We really imagine,” he mentioned, “that discrimination is fallacious in any means, form or kind.”

Judy Heumann went on to graduate from highschool and earn a bachelor’s diploma from Lengthy Island College and a grasp’s diploma in public well being from UC Berkeley. It was groundbreaking on the time, which reveals simply how a lot has modified, mentioned Maria City, the president and CEO of the American Assn. of Individuals With Disabilities.

“At the moment the expectation for youngsters with disabilities is that we’ll be included in mainstream training, that we’ll have an opportunity to go to highschool, to go to varsity and to get these levels,” City mentioned whereas acknowledging that inequities persist. “However I believe the truth that the first assumption has modified is a very massive deal, and I additionally assume Judy performed a big position.”

She additionally was featured within the 2020 documentary movie, “Crip Camp: A Incapacity Revolution,” which highlighted Camp Jened, a summer time camp Heumann attended that helped spark the incapacity rights motion. The movie was nominated for an Academy Award.

Through the Seventies she gained a lawsuit in opposition to the New York Board of Training and have become the primary trainer within the state who was in a position to work whereas utilizing a wheelchair, which the board had tried to assert was a fireplace hazard.

She additionally was a pacesetter in a historic, nonviolent 28-day occupation of a San Francisco federal constructing in 1977 that set the stage for passage of the People With Disabilities Act, which grew to become legislation in 1990. The protest is considered longest nonviolent occupation of a federal constructing in American historical past.

City, who has cerebral palsy, mentioned Heumann was the one who advised she use a mobility scooter to make it simpler to get round. She wasn’t prepared to listen to it at first after a lifetime of being instructed she wanted to seem much less disabled. Finally, although, she determined to provide it a attempt.

“And it’s actually modified my life,” City mentioned. “And that was a part of what Judy did. She actually helped folks settle for who they have been as disabled folks and take delight in that identification. And she or he helped so many individuals perceive their very own energy as disabled folks.”

A Instances employees author contributed to this story.

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